Little by Little

As you can see by my ongoing lack of posting, I continue to be occupied by Most Things Sam. Last Thursday was his IEP meeting- a meeting that was more crowded than usual.

Along with the usual players, there were several other people attending, including his summertime job coach, his liaison from the MRC , the director of his (hopefully) fall program, and the doctor who had done testing with him last fall. And Sam.

Since Sam is an adult, he participated for part of the meeting. He was there at the beginning during introductions, and then he was excused while we all covered some of the nuts and bolts of the various reports. After we got through all of that, we had Sam come back in for the setting of goals, etc. He did very well but when I rested my arm on the back of his chair and patted his back, I could feel the sweat coming through his shirt. I patted him and gently rubbed his back for the rest of the meeting.

I'm always hesitant to say how meetings like this go. Or at least I am when they seem to go well. I have a tendency to be wrong, and these kinds of comments come back to bite me. But at the risk of being bitten, I think it went fairly well.

There was a lot of input, a lot of note taking and no blatant obfuscation of issues. But the IEP still needs to be written and then it needs to be reviewed. Until then, we'll see.

This week, we having someone from the DDS coming to our house to interview him (and me). I don't know what to expect from this, since I don't really know all of what they do. I'm hoping I'll figure it out as we go along.

I have signed up for an evening workshop that has to do with the DDS and, I'm assuming, what they have to offer. But it isn't being put on by the DDS and it doesn't take place until a week after our meeting. I figure this should work out well, so that I can find out everything that I shouldn't have said and shouldn't have done.

Somewhere in all of this, I need to finish up on everyone's taxes and also get back on the pursuit of guardianship.

It's all on my list- my long, long list.